Monday, December 24, 2012

Merry Christmas


Tonight at Mass, Father talked in his homily of Jesus at about a year old just starting to walk and how wobbly he would have walked.  He wanted us to think about how crazy it was that the God who created the universe, and the gravitational pull that makes babies wobble, would enter this world in that humble way.  I found that to be a very timely observation for me for two reasons.  First, we've been following the Hubble Space Telescope Advent Calendar; on each day in December leading up to Christmas, they showed a different picture from the Hubble Telescope.  Owen looked forward to it each day and always wanted us to read the description of what it was.  I know Owen doesn't grasp the true meaning of what he was looking at; for me as an adult with a small understanding of astronomy it is mind boggling to try and understand the science behind the pictures and the vastness of subjects pictured.  God's creation is simply amazing.

Second, the big news around here is that Sophie is now walking!  One night three weeks ago I was playing with Owen when Sophie was grabbing my hands, motioning that she wanted me to walk her around (she likes holding on to one finger).  I wanted to give Owen some attention, so I told her, "You know, you can walk yourself."  So she did!  She took about 3 steps into my arms.  I figured that's about all she would do that night, but then she was so proud of herself and happy with our reaction that she did a good amount of walking that night. You can see the video here. Her walk is still that wobbly baby walk, but she still gets a kick out of it and is doing it more and more.

Last week we went to see Owen's Christmas play at his school (here's a wobbly video of that; he is the angel in the front row in the middle, wearing a blue shirt).  For some reason the play made me teary-eyed.  Partly I think it was remembering that there are parents who will no longer be able to see their kids perform here on earth and partly because the play brought a special innocence (and non-commercialism) to the Christmas story.  I love that Owen has gone to a Christian preschool the last few years.  He shows more awareness and interest in religious things (such as the Christmas story) than I expected.  As we look at schools to put Owen into next year for Kindergarten, I know we aren't going to continue paying for his schooling, so I know he won't get that kind of exposure to religion at school.  I just pray that I will be able to continue that interest in him, although I know that will be difficult as he gets older.

As we get together with friends and family this season I feel very blessed.  May you and yours have a blessed holiday season as well!




From O So December 2012

Sunday, October 21, 2012

Passing It On

Growing up my family did a lot of boating on the weekends.  The sailing (and swimming) during the day was, of course, great, but one of my favorite parts was hanging out on deck after dark.  The lakes we went to were outside the city enough to see a lot more stars than at home.  We would all get excited when someone pointed out a satellite and we could find it, and likewise we would be jealous of anyone who saw a shooting star that we did not get to see.  My parents taught my brother and I a few constellations, so we would always find them if they were up.  I will never forget the absolutely amazing view we saw of the Milky Way on one moonless trip to Lake Powell.  My mind was blown by the sheer number of stars we could see and how it actually looked like a galaxy.

Astronomy is a mind-blowing science.  I know all of science can be extremely interesting, but to me, at least, every fact that we know about space stretches my imagination in wonderful ways.  As a business major in college, I was lucky enough to avoid those boring/daunting science classes like biology or chemistry, and took astronomy.  Yeah, the lab was at night, which seemed like a hassle at first, but it turned out to be one of my favorite classes.  Most of what I learned from  that year is removed from my memory, but the wonder (and interest) is still there.

Tonight brought back memories of that class and of the many nights out on the water looking upward.  But let me go backward a few weeks.  When first asked what he wanted to be for Halloween, Owen said he wanted to wear a gray sheet.  He said he could be night.  I was a little confused at first, but then figured out where he got that from.  Owen has been watching and reading Peanuts cartoons lately; in the Halloween TV special, all of the kids were ghosts, wearing white sheets over their heads.  (Poor Charlie Brown had trouble with the scissors and instead of having two eye holes had holes all over his sheet.)  I thought that Owen's costume choice was a little odd at first, but I went with it, figuring he would want to change it a couple of days later.  I told him we could get glow in the dark star stickers and put them on the sheet, an idea which he liked.  Well, he hasn't changed his mind, and despite not wanting to go shopping with me to get the stars, he seems excited about it.

I can't remember where I saw it, but when I realized there was a meteor shower this weekend, I started thinking about how I could manage to get away from the city lights to see it.  Since the prime time to see the shower is after midnight I knew it wouldn't involve the kids.  But maybe some of my parent friends and I could sneak out of town after the kids went to bed and see some of the shower and then come home.  Or maybe we could camp somewhere close with the older kids and the adults could stay up late.  I started researching locations and came across the Lost Dutchman website advertising a Star Party.  Camping didn't work out, so I knew I wouldn't be able to see the shower, but the Party looked interesting.  So we went.

Owen has the "Here Comes Science" CD/DVD by They Might Be Giants, which has several space-themed songs.  His favorite is "How Many Planets?", and he also likes "What is a Shooting Star?".  We told him there was a meteor shower this weekend, and sold the Star Party to him by saying he would see Jupiter.  So he seemed excited, but when we got in the car to go to Lost Dutchman (about a 40 minute drive from our house), he started falling asleep.  I was worried he was going to be cranky and uninterested (and/or afraid of the dark).  But he did fine.  Our friends Nate and Beck ended up going, which I think helped Owen's enjoyment level (I know it did ours).  [A big thanks to Nate for giving up his winning raffle ticket so Owen could win a small toy airplane (the guy doing the presentation was also some kind of plane expert).]  Despite the presentation being long and above his head (both literally and figuratively), Owen didn't really complain the whole night.  They had a neat telescope that they were able to hook up to the video screen and showed us some amazing views of the craters on the moon.  They used (really expensive; I think he said $700) laser pointers that you could see 50 miles into the sky with to point out different stars and constellations.  I was busy keeping an eye on Sophie (who constantly wanted to move around); several times I looked over at Owen in Keith's arms, expecting him to be falling asleep.  Instead he was looking upward into the sky.  Keith said Owen wanted him to hold him laying back so he could see up easier.  At one point during the presentation I took Sophie into the parking lot because she was being noisy and came across someone looking through powerful binoculars on a tripod, so I started talking to him.  It turns out he was scoping out the "competition" because he was doing similar presentations once a month starting in November at Lost Dutchman.  He showed me several things through the binoculars and then I brought Owen over to see.  Owen seemed genuinely interested, at least for a little while.  Jupiter didn't come up over the horizon until 8:30pm, and since seeing Jupiter was the main reason we came, we had to wait to see it.  Actually that was a bit disappointing because the view through the telescope wasn't that much different than with the naked eye.  But Owen didn't seem upset about that.

What kind of effect tonight will have on Owen remains to be seen.  Maybe it's just a better understanding of what his Halloween costume is.  But we will definitely be heading back to Lost Dutchman for more presentations.  One of the awesome things about being a parent is passing on things that interest you to your kids.  If I can pass on even a small portion of my wonderment about the night sky, then I will have done my job.

Sunday, September 9, 2012

Vacation Jumps

As I mentioned in my last email, this has been a busy travelling summer.  Which has been great.  It's been good for me to get out of town with my frisbee team and have some time without the kids (thanks Keith!).  It's also been good for the kids.  It seems that when we take the kids travelling, Sophie comes back and shows a jump in her development.  This summer was no exception.

In June we went to visit my brother and his family in San Diego.  I can't remember a specific "jump" that Sophie made, but overall it helped with her speech, physical therapy and eating.  Her GI doc has been slowly weaning her off the G-tube; she currently gets about half her liquids from the G-tube and half by mouth.  It's a slow process, but she is showing improvement.

In July I took the kids to New York to see Keith's side of the family.  Keith didn't go, but my mother-in-law Peggy travelled with us, which was a big help.  Owen actually showed some development on this trip.  One afternoon we were at Peggy's cousin's house when it was raining.  Owen was of course shy at first, but Steve  convinced him to go feed the fish in the pond; and then count the fish.  Owen had a ball going back and forth from the patio to the pond counting different kind of "fish" in the pond - sharks, sea horses, octopus, etc.  All of this while getting wet in the rain!  Before the trip Owen hated getting wet ("except in the pool or in the bath").  Then, after years of refusing ice cream and popsicles because they were too cold, he tried, and ate, frozen yogurt.

In August we went up to Flagstaff with my parents to stay in a time share resort.  It was a very relaxing week for me.  It rained every day, but we didn't really care; we did our outdoorsy stuff in the morning and then came back to the condo (which was beautiful!) in the afternoon for naps and movies.  The biggest thing to come out of this trip was that Sophie started standing on her own!  At first she just let go and didn't realize she was doing it; now she does it on purpose and gets a big kick out of it.  The longest I've seen her stand is for about 6 seconds; she still has her feet kind of wide, so she still has a ways to go, but I like that she is motivated to try it herself.

Our family trips are over for the summer, but it's starting to finally cool off here, so we can get out and about around town, which is good for everyone!

Here are some pics from the trips.  A lot more are on my Picasa page.

From San Diego May 31 - June 4

From San Diego May 31 - June 4

From San Diego May 31 - June 4
From New York July 2012
From New York July 2012
From Flagstaff August 2012
From Flagstaff August 2012
From Flagstaff August 2012

Sunday, August 12, 2012

Things to remember next time we go camping

Yep, a couple of months have gone by again without a post.  Sorry.  I've been travelling so much the past few months that it seems like I am in a constant state of packing and unpacking.  I've been gone (at least part of) the past 3 weekends, and of the past 11 weekends, I've been travelling for 6 of them.  And I'm not done with all of my travelling for the summer yet.  A lot of the travelling is for my Ultimate Frisbee team, but not all of it.  I'll post pictures soon of my trip to New York & Sophie's birthday, but I wanted to post about our family camping trip before I forget about the details.

Last weekend we took the kids on their first tent camping adventure.  We went to the rim, near Blue Ridge Reservoir.  Owen has gone camping with Grandma & Grandpa in their motorhome, but obviously this is a different experience.  For him & us.  As I mentioned, I've done a lot of packing lately - week long trips to CA & NY - but it's been a long time since I've camped, and adding kids to that makes packing even harder.  We somehow managed to bring just about everything we could possibly need (read:  too much) and still have room for the kids.  It'll probably be a year until we go camping again, so to remind myself then what I know now, here are the things I want to remember next time.

1.  Go super easy with the food. We went with some friends who brought the main course for the dinner (hamburgers).  We brought corn and bacon.  For breakfast I cut up potatoes and brought eggs, cheese & green onions to go along with the leftover bacon.  I figured we would enjoy some good food while "roughing" it.  Even though I cut up everything ahead of time, it still seemed like everything took too long.  I would have rather rolled out of bed and had a pre-made muffin that cleaned up easy and had more time to spend with the kids.  Same with the dishes; this trip I was attempting to clean the dishes in the dying light.  Disposable is probably the way to go, but if I'm feeling environmentally conscious, I could bring enough plates/silverware to not have to do dishes.

That being said, don't skimp on the s'mores.  Our friend had the idea of trying different chocolates (kit kat, crackle, etc.).  We'll have to try that next time.

2.  I don't need to pack so much.  I brought a bag of toys/activities for the kids that never even got opened.  Sophie was (mostly) content to just crawl around and explore.  Owen played with the other kids and their stuff.  And I need to make a rule for next time.  No electronics once we are there.  Yep, I'm looking at you, Keith.  No music and no movies on the Nook (although I will admit having the movies makes the car ride a lot easier).

3.  Except, of course, for the camera.  I don't have many pictures this time cause we've been having trouble with our batteries, which of course died in the middle of the trip.  I find taking pictures is therapeutic, so this was a source of frustration for me.

4.  The other exception would be flashlights.  When my family went camping growing up, we usually went for a walk after dinner.  So this time I sold it to the kids as a "flashlight walk".  Everyone had their own, which Owen really liked.  It was a very small campground (only 10 spots), so the walk was short, but hopefully as the kids get older we can extend it and make it a tradition.

5.  One other thing not to forget is water shoes.  Probably the best part of the trip was when we went to the creek (East Clear Creek on FR 95) and walked around in it.  Sophie of course crawled right in.  Owen, expanding on the courage he gained playing in the rain and swimming in the lake in NY, got his clothes wet.  And didn't even complain about it!

6.  Make room for the wine.  That was a good call, if I may say so myself.

7.  Not only do I need to pack less, but I need to pack *better*.  Living out of the back of a car is not easy when nothing is in easy reach and mixed in with a bunch of other stuff.  For our car trips to CA we started using big bins to put our stuff and clothes in.  It works great when you have a place to go where you can take stuff out of the bins and organize them.  However, digging through a bin of the whole family's clothes, in the dark, to find one specific piece of clothing, was frustrating.

8.  The middle of the night is probably not the best time to form a plan on what to do if a bear attacks your tent/car.  Sophie did not sleep well that night.  She went to bed fine, but then when we came back in the tent to put Owen to sleep, she woke up.  And stayed awake for 3.5 hours.  Which left me half asleep/half awake, listening to the sounds in the campground.  I definitely heard animals in the distance (supposedly cows, but I'm not so sure).  Combine that with my parents telling me the week before that some campgrounds near the rim were closed due to bears attacking tents, and my mind was playing tricks on me.  At one point I was convinced a bear had his paws up on a car and was pounding on it.  Turns out it was just our friends getting in their car to get their mattress pump.  Hmmm, maybe the wine wasn't such a good idea.

9.  Give Sophie the Tylenol at the first sign that she is going to be awake, don't wait 3.5 hours.  That usually puts her back to sleep, so I'm not sure why I wait so long.  Guess I was too busy thinking about bears.  

10.  Spend more than one night.  Camping is a *ton* of work.  We couldn't go Friday night, so we arrived Saturday around noon.  By the time we made lunch, cleaned up from lunch, put up our tents, organized things a bit, we only had a short time to do things like hike and go to the lake before we had to get dinner ready.  Then clean up from dinner.  Then get ready for bed.  Sleep, then get breakfast ready, then clean up, then take down the tents, then...  Well, you get the idea.  At one point Owen asked who was going to play with him and Keith and I couldn't - we had too much work to do.  I felt a wave of guilt come over me.  The idea of camping is to have family time, and we didn't have enough of that this camping trip.

Overall we did have fun.  I'm not sure if it was worth all of the work, but you never can tell for sure.  Each new experience for the kids helps them grow.  I've been told it gets easier as the kids get older, and hopefully I'll know how to pack/organize better next time.

And, in case you are wondering, I just looked up how to deal with a bear.  If there is a bear outside of your tent, make sure it is aware there is a human inside by using a firm monotone voice, turn on a flashlight, and if the bears enters the tent, fight back and yell.   

Ok, I'm ready for next time.



The group hiking.  Owen called it an "Explore" (from Winnie the Pooh).  Whatever you call it, it didn't last long, as it started raining and thundering, so we headed back.  Pictured:  Megan with Maya, Rob with Kayan, Tina (with ??), Bryan with Finn, Keith, and Owen.  I had Sophie on my back.
From O So August 2012

Owen was a little cranky at the start of the hike and refused to walk.  Then five minutes later he was running up and down the trail chasing people.  That's Owen for you.
From O So August 2012

The Blue Ridge Reservoir.  Our friends brought kayaks, but the lake itself was only accessible at the boat ramp, which was crowded, so we didn't end up going in because it wasn't very kid friendly (and the kids all fell asleep on the bumpy dirt road to the lake).  But it was very pretty!
From O So August 2012

Sophie enjoying the campground (Blue Ridge Campground).
From O So August 2012


Tuesday, May 22, 2012

Trip to Holland

For my birthday last September, Owen (and Daddy) made me the following card, which of course, made me cry (the happy kind):
From O So September 2011

So it was no surprise to hear that Owen was working on another card for Mother's Day.  Come MD morning, he wasn't finished with it, so Daddy and Owen were working on it while I was doing various things around the house.  I could hear a few of the things they were writing on it, so I was wondering if I was going to get emotional when I read it.  I think I held myself together until I read # 6:


If you can't read it, #6 says "Appreciating our trip to Holland".  I totally lost it at that point. 

If you're wondering how you missed my post and pictures from our trip to Holland, don't worry, we haven't gone anywhere.  Keith is referring to this story, which a friend of ours sent us when Sophie received her diagnosis in August. First, I was surprised that Keith remembered the story.  Second, I appreciated the fact that he noticed my acceptance of the revised "trip" that our lives have become. 

And I have come to a greater acceptance.  When I first read the Holland story I didn't think it was the best analogy.  I think my biggest disagreement with it was that it didn't really admit that taking care of a special needs child was not just different - it was harder.  There isn't just developmental issues to deal with; there are medical issues that can cause suffering.  We have been incredibly lucky that Sophie has been healthy and I thank God often for that.  But I now realize that along with the difficulties there are blessings.  You appreciate the little things.  You learn things you would never have learned.  As the story mentions, you meet new people you would never have met otherwise.  On Monday Sophie and I went to a BBQ at our church for families with special needs children.  I was struck by how different some of the people in the group are.  I wasn't sure if I would fit in.  But then you start talking and you realize how much you have in common.  There is an instant bond when you meet someone with shared experiences.  I feel that bond with all mothers/parents to a certain extent, but especially with those with special needs kids. 

Did I say that I held it together until #6?  Ok, I probably lied.  #4 probably holds the most value for me, because it is the truest of them all. 

Happy late Mother's Day!

I've been remiss in posting lately, so here are some pictures to get you (almost) caught up.

Monday, May 14, 2012

Owen and the Bean Stalk

This is a mashup of monsters and green beans. You've been warned.

Coming home from school two weeks ago, Owen announced that he wanted to break his green bean eating record. He wanted to confirm the number, and I told him it was 38.

"So I have to eat 39?"
"At least"
"Just 39. I'll do 40 next time."

Got to admire his awareness of not overextending himself.

With our vegetable set, we went with pasta as the side dish. I suggested to him that it might be best to start with green beans, and to use the pasta as a break.  But if pasta is on the plate, he eats it first. While I'd prefer he engage in circle eating, he has learned to eat all of one thing before moving on to the next at school, as that is their control mechanism to keep them on track. Fortunately, I only gave him a small amount of rotini before he got started on a record setting performance*. Here's the conclusion. If you're not a grandparent, I am fairly certain it is a waste of four minutes, so don't feel obligated to watch:



*although he set a record with 39, topping his record of 38,  the 36 he ate just before the 38 is still the most impressive performance, based on size of the green beans in that sitting.  And really this green bean thing may not be all that impressive from a quantity amount. I really should weigh it. It's not uncommon for him to eat gobs of fruit for dessert, such as a recent small bowl of grapes, tangelo, banana effort, or a big bowl of tropical fruit (strawberry, papaya, mango, pineapple).

All this makes other people think he's a good eater. But really he's just OK there. What he has is a good diet. I do worry about being too restrictive in that he's not getting the opportunity to figure out for himself a proper balance, but maybe four year olds weren't meant to do that. I've tried to lighten up a little when he gets things that he doesn't get in the house. (Really Mom, I am trying!). Last Sunday, we went to a Derby party in which we were served the traditional Derby Pie, following the hosts' 7 year old and 4 year old chanting "we want pie, we want pie..."  On Monday, Owen asked if I liked their "pie song." So it goes...

And in completely unrelated news but relevant due to post title, Owen really does not like my favorite kids book to read--The Monster at the End of this Book. I vaguely remembered it from when I was a kid, figured out what book it was and purchased maybe 2 years ago. The initial readings went OK, but Owen didn't really comprehend everything, and I wasn't quite pushing the boundaries of its performance. But on last year's trip to San Diego, I perhaps embellished too much in Grover's pleading the reader  not to turn the page, and Owen thought I was mad at him and started crying. Ever since then, he's been afraid of it.   I try every few months, but to no avail.

On recent attempts, his reasons for not wanting to read have become more... rational, if you will: we NEED to listen to Grover. Despite Owen knowing the monster at the end of the book is in fact Grover, he absolutely does not want me to turn any pages. Last week, Joanne recorded part of this attempt (please excuse the very questionable parenting going on as well as my hair):



Last Monday (May 7), Owen brought the book to me and asked if it was my favorite book (I do think it's great and I'm hoping that if I like it that much, he'll let me read it again) and I said yes, it is my favorite book to read to him. We then negotiated terms of a prospective reading, and that was to not read it, but to just turn the pages. Alas, that lasted two turns and then I had to keep the book away from him as I turned the pages.  We got the end and he completely relaxed and let me read the last page. He then said "Daddy, you should really listen to Grover."